About The Ujaas Foundation
The Ujaas Foundation is registered as a public charitable trust with
its office located at New Garia, Kolkata. The Foundation has been
operational since September, 2015. This social initiative has been
approved from the Office of IT commissioner under the provisions
of Article 12A of IT act. The Ujaas Foundation also referred to as
UJF, has been working mostly for the benefit of families affected
by critical paediatric conditions like Leukaemia. The organisation
functions from the funding it receives through its donor panel
and from active support of its community volunteers network. The
application for 80G certification from IT department is in process. The Foundation doesn’t charge
anything from the beneficiaries for it’s counselling services. The
Foundation doesn’t retain any fraction from the donations it
receives from its case specific campaigns. The operational
expenses are met from its corpus earnings and untied financial
support from its donors.
Treatment of Leukaemia
Leukaemia is curable. Eminently so ! Globally, the survival rate of ALL-B type
Leukaemia is touching 90% now. In India, it would be little less because of the
inconsistency and deficiency in the supporting ecosystem for the treatment.
However, the treatment efficacy has gone through dramatic improvement since the
last three decades, raising the hope of so many families affected by paediatric
leukemias across the country.
This is specially for the parents and other caregivers in the family to note. While we
all hope and wish well for the little one, a favourable outcome is heavily dependent
on your abilities to cope with stress and promptness to identify and respond to
critical emergencies. The journey ahead will be like a marathon and definitely a
difficult test of your resilience, patience and optimism. The treatment plan as
advised by your paediatric oncologist or haematologist, will be most likely a protocol
that is customised to suit your child’s specific clinical conditions and will span over
two years or more.
The top 10 Key Points You Must Remember
1. Identify the treatment centre for your kid as soon as possible once the diagnosis
of leukaemia is confirmed. Evaluate variables like support infrastructure,
experience and relevant qualification of the medical team, proximity,
affordability and actively seek opinion of the family physician or the
paediatrician of your child.
- 2. Organise your financial resources as per the financial estimates given by your
child’s haematologist or from the healthcare facility selected for the treatment .
- 3. You can add a 15-20% margin on the estimates to account for clinical
contingencies. Please remember to plan your cash flow across the treatment
period of 30-36 months ahead of you .
- 4. It is important that you define and share the responsibilities of your family’s
finances, treatment supervision and all other domestic chores with your spouse
and/or other primary caregivers beforehand with absolute clarity to avoid nasty
surprises in future.
- 5. Plan your stay within 10 km radial distance of the treatment facility so that you
can take your child to the hospital ideally within 30 mins incase of a clinical
- 6. Ensure highest level of cleanliness of the room where your child would be
staying during the treatment period . The same rules applies for all caregivers in
maintaining their personal hygiene. All clothing, linen, cooking and serving
utensils should be washed and cleaned everyday with missionary zeal.
- 7. Stay focused on the nutrition your child is receiving. Regularly monitor your kid’s
body weight and consult your dietitian accordingly. Ensure complete avoidance
of street food or any edible product that is not packaged or not steaming hot
and freshly cooked.
- 8. Identify and keep your panel of blood and platelet donors in confidence and well
informed beforehand. Your kid is going to require many units of blood and
platelet transfusion during the course of treatment.
- 9. Do not discuss clinical issues and related concerns with your child or keeping
her/him in audience. Seek guidance from your counsellor on what should be
discussed with your kid and how.
- 10. Lastly, only pay heed to information from qualified sources backed by facts and
not to anything that might be completely conditioned by individual perceptions
of the peer group caregivers of non clinical background.Please don’t be shy to
check with your child’s physician or counsellor about any doubt you might have
about the treatment.