About The Ujaas Foundation
The Ujaas Foundation is registered as a public charitable trust with its office located at
New Garia, Kolkata. The Foundation has been operational since September, 2015. This
social initiative has been approved from the Office of IT commissioner under the
provisions of Article 80G and Article 12A of IT act. The Ujaas Foundation also referred to
as UJF, has been working mostly for the benefit of families affected by critical paediatric
conditions like Leukaemia. The foundation focuses on creating accessible knowledge
repository and offer high quality counselling services to the care givers of paediatric
leukaemia. The support mechanism to the beneficiary families, is delinked from the
projected prognosis of a child and is offered according to availability of necessary
The organisation functions from the funding it receives through its donor panel and from
active support of its community volunteers network. The Foundation doesn’t retain any
fraction from the donations it receives from its case specific campaigns. The operational
expenses are met from its corpus earnings and untied financial support from its donors
,from time to time. The operating policy of The Ujaas Foundation is non-discriminatory
with its beneficiaries and other stake holders. The foundation does not have any religious
or political affiliation. UJF is a gender neutral organisation and also doesn’t carry any
domiciliary status linked bias while working with its stakeholders.
Treatment of Leukaemia
Leukaemia is curable. Eminently so ! Globally, the survival rate of ALL-B type
Leukaemia is touching 90% now. In India, it would be little less because of the
inconsistency and deficiency in the supporting ecosystem for the treatment.
However, the treatment efficacy has gone through dramatic improvement since the
last three decades, raising the hope of so many families affected by paediatric
leukemias across the country.
This is specially for the parents and other caregivers in the family to note. While we
all hope and wish well for the little one, a favourable outcome is heavily dependent
on your abilities to cope with stress and promptness to identify and respond to
critical emergencies. The journey ahead will be like a marathon and definitely a
difficult test of your resilience, patience and optimism. The treatment plan as
advised by your paediatric oncologist or haematologist, will be most likely a protocol
that is customised to suit your child’s specific clinical conditions and will span over
two years or more.
The top 10 Key Points You Must Remember
1. Identify the treatment centre for your kid as soon as possible once the diagnosis
of leukaemia is confirmed. Evaluate variables like support infrastructure,
experience and relevant qualification of the medical team, proximity,
affordability and actively seek opinion of the family physician or the
paediatrician of your child.
- 2. Organise your financial resources as per the financial estimates given by your
child’s haematologist or from the healthcare facility selected for the treatment .
- 3. You can add a 15-20% margin on the estimates to account for clinical
contingencies. Please remember to plan your cash flow across the treatment
period of 30-36 months ahead of you .
- 4. It is important that you define and share the responsibilities of your family’s
finances, treatment supervision and all other domestic chores with your spouse
and/or other primary caregivers beforehand with absolute clarity to avoid nasty
surprises in future.
- 5. Plan your stay within 10 km radial distance of the treatment facility so that you
can take your child to the hospital ideally within 30 mins incase of a clinical
- 6. Ensure highest level of cleanliness of the room where your child would be
staying during the treatment period . The same rules applies for all caregivers in
maintaining their personal hygiene. All clothing, linen, cooking and serving
utensils should be washed and cleaned everyday with missionary zeal.
- 7. Stay focused on the nutrition your child is receiving. Regularly monitor your kid’s
body weight and consult your dietitian accordingly. Ensure complete avoidance
of street food or any edible product that is not packaged or not steaming hot
and freshly cooked.
- 8. Identify and keep your panel of blood and platelet donors in confidence and well
informed beforehand. Your kid is going to require many units of blood and
platelet transfusion during the course of treatment.
- 9. Do not discuss clinical issues and related concerns with your child or keeping
her/him in audience. Seek guidance from your counsellor on what should be
discussed with your kid and how.
- 10. Lastly, only pay heed to information from qualified sources backed by facts and
not to anything that might be completely conditioned by individual perceptions
of the peer group caregivers of non clinical background.Please don’t be shy to
check with your child’s physician or counsellor about any doubt you might have
about the treatment.